View gallery
Celine Dion is able to speak concerning the private well being battle that has left her unable to carry out. In a preview for Prime Video’s new documentary I Am: Celine Dion launched Thursday, May 23, the Grammy winner opened up about her Stiff Person Syndrome prognosis.
“I’ve been diagnosed with a very rare neurological disorder and I wasn’t ready to say anything before,” Celine, 56, stated. “But I’m ready now.”
According to Johns Hopkins University, Stiff Person Syndrome mostly causes muscle stiffness and painful spasms that come and go and may worsen over time. However, some individuals expertise different signs corresponding to double imaginative and prescient or slurred speech.
Currently, there isn’t a therapy however working with a specialist and sustaining symptom management could make it simpler to dwell with the situation.
As a results of her prognosis, Celine needed to cancel her Courage world tour in May 2023. In the trailer for her upcoming documentary, the “My Heart Will Go On” singer shared a glimpse into how troublesome it was to cease performing.
“When you record, it sounds great. But when you go on stage, it will be greater,” she stated. “It’s not hard to do a show, you know? It’s hard to cancel a show.”
Celine continued, “My voice is the conductor of my life. When your voice brings you joy, you’re the best of yourself. I need my instrument.”
According to Prime Video, I Am: Celine Dion goals to serve “as a love letter” to loyal followers. The inspirational documentary – which additionally options Celine’s three sons along with her late husband René Angélil – additionally hopes to spotlight the music that has guided Celine’s life, whereas additionally showcasing the resilience of the human spirit.
“I’m working hard every day, but I have to admit it’s been a struggle,” Celine stated whereas holding again tears. “I miss it so much. The people. I miss them. If I can’t run, I’ll walk. If I can’t walk, I’ll crawl and I won’t stop.”
That identical spirit was felt in an interview with Vogue France in April. During the candid dialog, “The Power of Love” singer shared her intention to dwell with Stiff Person Syndrome to the very best of her skills.
“The way I see it, I have two choices,” she stated. “Either I train like an athlete and work super hard, or I switch off and it’s over, I stay at home, listen to my songs, stand in front of my mirror and sing to myself. I’ve chosen to work with all my body and soul, from head to toe, with a medical team. I want to be the best I can be.”
I Am: Celine Dion premieres June 25 on Prime Video.