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Céline Dion‘s sister has shared a heartbreaking update about the singer’s sickness, saying the legendary chanteuse “doesn’t have control over her muscles” on account of signs of stiff particular person syndrome (SPS).
In a French-language interview, Claudette Dion informed 7 Jours that her sister can not management sure physique actions, however that the final word objective is “to return to the stage.”
“In what capacity? I don’t know,” she added.
FILE – Singer Céline Dion performs on the Vidéotron Centre in Quebec City on Wednesday, Sept. 18, 2019.
Jacques Boissinot/The Canadian Press
It’s been a yr for the reason that pop celebrity introduced her analysis with the uncommon autoimmune dysfunction of the nervous system.
Her world tour was presupposed to take the 55-year-old to Europe and the U.Ok. this fall and subsequent spring, however she introduced in May that she would cancel the tour.
“I’m so sorry to disappoint all of you once again,” she mentioned in a May 26 assertion. “I’m working really hard to build back my strength, but touring can be very difficult even when you’re 100 per cent.
“There are some who have lost hope because it is a disease that is not (very well) known,” Claudette informed 7 Jours.
“What pains me is that she has always been disciplined. She’s always worked hard. Our mother always told her, ‘You’re going to do it well, you’re going to do it properly.’”
In August, Claudette mentioned that one other of their sisters, Linda, had moved in with Dion to assist together with her care.
“When I call her and she’s busy, I speak to my sister Linda who lives with her and tells me that she’s working hard. She’s listening to the top researchers in the field of this rare disease as much as possible,” Claudette informed Le Journal on the time.
“I honestly think that she mostly needs to rest. She always goes above and beyond, she always tries to be the best and top of her game. At one point, your heart and your body are trying to tell you something. It’s important to listen to it.”
The reason for SPS, a particularly uncommon illness, is nonetheless unknown, in line with Yale Medicine, “but researchers suspect that it may be the result of an autoimmune reaction where the body attacks nerve cells in the central nervous system that control muscle movement.”
The identify doesn’t do justice to the ache and life-changing signs the syndrome causes, Tara Zier, founding father of the Stiff Person Syndrome Research Foundation, informed The Canadian Press earlier this yr.
“A lot of people have challenges with mobility. Many have assisted devices for mobility, walkers, wheelchairs. Some people are bedridden,” she mentioned.
The Stiff Person Syndrome Research Foundation says “the most common symptoms of SPS are muscle rigidity, stiffness and spasms in the muscles of the trunk including the back and limbs.”
These could be triggered by environmental stimuli, like loud noises or emotional stress.
“The muscle spasms can be so severe they cause the person to fall down. The muscles gradually relax after the stimulus is gone,” the Yale Medicine web site states.
While there is no such thing as a treatment for SPS, when medical doctors deal with sufferers with this situation, Yale Medicine says they deal with managing the signs with drugs “such as sedatives, muscle relaxants, and steroids.”
FILE – Celine Dion performs in live performance on the Bell Centre in Montreal, Sunday, July 31, 2016.
Graham Hughes / The Canadian Press
In early November, Dion made a shock look together with her sons when the Montreal Canadiens took on the Golden Knights in Las Vegas.
The icon shared just a few pictures on-line, marking her first public outing since her analysis.
In the snaps, Dion posed her youngsters — René-Charles and twins Nelson and Eddy — within the locker room with Habs gamers and coach Martin St. Louis. The legendary singer and her boys had “such a fun time” visiting the group.
— With information from Global News’ Kalina Laframboise and Sarah Do Couto
© 2023 Global News, a division of Corus Entertainment Inc.
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