Via Instagram, singer Celine Dion is talking brazenly about her journey as somebody with the uncommon neurological situation stiff particular person syndrome (SPS), an incurable dysfunction which causes uncontrollable muscle spasms and ache. The 55-year-old Canadian queen of energy ballads additionally mentioned she’s hopeful she will be able to discover a strategy to carry out for audiences once more, following an onstage look final month.
The previous few years have been non-public ones for the “My Heart Will Go On” singer, who introduced in late 2022 that she’d been recognized with SPS after “dealing with problems with my health for a long time.” The situation had been “causing difficulties when I walk” and was “not allowing me to use my vocal cords to sing the way I’m used to,” the singer mentioned, a problem that pressured her to cancel performances she had deliberate in 2023.
Since then, she’s been noticed solely briefly—at an NHL sport final November, and in a shock position as a presenter on the Grammys final month. The latter look was particularly unanticipated by followers, as simply a number of months earlier than, Dion’s sister, Claudette Dion, mentioned “She doesn’t have control over her muscles.”
“It’s true that in both our dreams and hers, the goal is to return to the stage,” Claudette mentioned in December 2023. “In what capacity? I don’t know.”
Dion appeared in good spirits on the Grammys in February, when she was greeted with a standing ovation. “When I say that I’m happy to be here, I really mean it from my heart,” Dion mentioned, earlier than awarding Taylor Swift with the trophy for Album of the Year.
In an Instagram publish printed late Friday night time, Dion famous, “Today the world recognizes International SPS Awareness Day,” held yearly on March 15.
“As many of you know, in the fall of 2022, I was diagnosed with Stiff Person Syndrome (SPS),” the singer wrote within the caption to a photograph of her along with her youngsters along with her late husband, René Angélil. In the picture, she stands in entrance of a backdrop emblazoned with the emblem for go-kart firm K1, whereas sons René-Charles Angélil and twins Nelson and Eddy Angélil seem to carry trophies from an unspecified occasion.
“Trying to overcome this autoimmune disorder has been one of the hardest experiences of my life,” Dion wrote. “But I remain determined to one day get back onto the stage and to live as normal of a life as possible.”
“I am deeply grateful for the love and support from my kids, family, team and all of you,” Dion wrote in conclusion. “I want to send my encouragement and support to all those around the world that have been affected by SPS. I want you to know you can do it! We can do it!”
Those looking forward to extra from Dion received’t have to attend till she resumes her tour, it seems. I Am: Celine Dion, a documentary billed as depicting Dion’s “never-before-seen private life” as she “navigates her journey toward living an open and authentic life amidst illness,” is predicted to land on Prime Video at some level in coming months.
Included within the movie, which was directed by award-winning documentarian Irene Taylor, is reportedly a 12 months’s value of footage that features a go to by Dion to her “couture touring wardrobe and personal effects” in addition to scenes of the singer within the recording studio.